Thursday, June 23, 2011

Many updates today and last night

Updates from Luke's mother:

11:00am Luke had a restless night. They had to really medicate him to keep him still, so when came to do neuro this morning he was less responsive. Would only wiggle left toes when asked. Slight right toe but would not move hands.
Wednesday 5:37pm Luke just made the first, what the doctors will consider purposeful movement. Kept bringing both arms, left more than right up to chest area, The nurse suctioned him and he was more awake kind of panicking by gagging on tube. I said Luke calm down, he did she started to ask Luke stick up your thumb. Luke stuck up 2 fingers. He did it with left hand, and kept opening and closing fingers uncoordinated trying to grab.

He will get the trac so that he stops panicking with the tube so they can keep sedation lower. Remember the left is what they said would be paralyzed . I have been so concentrating on that side I guess I have to equal them out now.

Keep the prayers coming, purposeful movement when asked by the staff. Low ICP the time out of woods for that has not passed yet. He is in there we need low numbers so not to destroy the healing that has happened,

We were so hoping after Luke spent the night so restless with the vent that we could be on the list for today, but we can not, they have to do PEG, Trach, and change his central line to other side, they cultured it, it may be infected or contamninated at draw, so we will draw culture today and wait for culture and d change line Friday when doing all else. They do Peg right at bedside as well.

11:03am Need paryers for: Low ICP numbers, calmness, rest, rewire his brain, move when asked. Thumbs up, 2 fingers up, eyes open, wiggle toes.

12:40pm Came out to get positive energy and recharge while they turn Luke. Thanks to you all. Even though Luke moves for nurse the doctors will not agree because he does not move for them. I know Luke is in there, perhaps he is waiting for strength for that punch, take them by surprise. The doctors say they do not see improvements, boy are they ultimate pessimist.

4:40pm Luke has had a calmer day then night, he is in a real good sleep right now, he will get a trach on Friday, and feeding tube on Friday. His A line is red at site and they are not drawing as many artiial gases. So they are going to take out line and not put one back in at this point. Many residents in to see him. So lots positive thoughts are needed, they have too much neg energy.

... well that lasted all of 20 minutes. The residents decided to put a new A line in Right wrist.
On a personal note, and I'm sure the family would agree... Thanks to those that have donated. Every little bit helps.

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